Here’s little Jack Stevens. He was born with only half a heart: a result of Hypoplastic Left Heart Syndrome.
According to Caters News, he has had four open heart surgeries and five operations, suffered a stroke and has had to be resuscitated three times.
Jack’s father Chris, an engineer, told Caters: “He’s been through so much in such a short space of time but he’s doing brilliantly.”
And he’s recently celebrated having his feeding tube removed for the first time!
At 15 months old, he’s now at home with his parents – Chris and his partner Ashton Hodge, 27, a charity worker.
Chris told MailOnline: “It was really difficult watching him lying in his hospital bed for so long surrounded by machines and tubes. But we knew it was best for him and he’s battled through everything – he’s a real fighter.”
And he’s now on verge of taking his first steps and speaking.
He will, however, need a transplant – and apparently won’t ever be able to do any intense physical activity. He also needs about a dozen different medications around four times a day, and three different drugs via a syringe.
His father said: “We knew about his condition before he was born and he spent the first five months of his life in hospital. He had to have open heart surgery when he was just one week old and he’s had three more since. Jack was only 4lbs 4oz when he was born and the condition has slowed his development.”
He’s certainly come a long way.
As his dad says: “We’re both so proud of him – he’s a very inspirational boy.”